Epilepsy Community -- Take this Survey. Your Opinion Matters. CaregiverSurveys.com

Dec 13, 2025‱Channel
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Video Overview

Video Details

Published6 months ago
Duration1:19
Video IDCfwZ4_Y-e2w
Languageen
CategoryNonprofits & Activism
PrivacyPublic
Made for KidsNo
Video TypeRegular Video

Performance Metrics

Views1.3K
Likes5
Comments0
Engagement Rate0.38%
Likes per 100 views0.38
Comments per 1K views0.00

Description

Seizures are only part of the picture—this survey will help capture the real-life challenges families face every day. Take the survey here: 👉 https://caregiversurveys.com Families in the epilepsy community know that seizures are not the whole story. Many caregivers also face behavioral challenges like aggression, irritability, sudden outbursts, and self-injury—issues that can be incredibly difficult to manage and are often not talked about enough. Greg Grunberg shares why the LGS Foundation, the Dravet Syndrome Foundation, and the TSC Alliance have come together to launch the Behavioral Impact Project—a confidential, 20-minute caregiver survey designed to capture real, day-to-day experiences and identify what support families need. If you are a caregiver, your voice matters. Your experience matters. And together, our community can help drive real change. Take the survey here: 👉 https://caregiversurveys.com Please consider participating—and sharing this survey with other families who may benefit from having their voices heard. #epilepsy #CaregiverVoices #behavioralhealth #epilepsycommunity #caregivers #advocacy #rarediseases #seizures #familysupport #makerealchange #LGSFoundation #TSCAlliance #DravetFoundation

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