They had only a few days to figure out what this was
Nov 1, 2025•Channel
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Video Overview
Video Details
Published7 months ago
Duration15:15
Video IDVHkrLMd5wmA
Languageen
CategoryScience & Technology
PrivacyPublic
Made for KidsNo
Video TypeRegular Video
Performance Metrics
Views135.9K
Likes19.4K
Comments1.2K
Engagement Rate15.19%
Likes per 100 views14.30
Comments per 1K views8.93
Description
@HemeReview In-depth: https://youtu.be/vAYw75Y1PCc
Visit SMARCB1 Hope at https://smarcb1hope.org/
Thank you to Cassie and Jean-Baptiste Toulouse for sharing Ella's story
Thank you to Dr Pavlos Msaouel for connecting me with Cassie and Jean-Baptiste. Dr Shirley Su for providing insight to Ella's case from the surgeon's perspective. Dr Neal Akhave for providing insight to Ella's case from the medical oncologist's perspective from MD Anderson Cancer Center.
Interview Director of Photography: Pernelle Gaufillet-Ventura
secret channel: @BigEmus
Music by @Lifeformed
Medicine ► https://www.youtube.com/playlist?list=PL26HeTCO57qcMQB6CrU6QRzEi9tt9l1FI
This video is not individual medical advice and are for general educational purposes only. I do not give medical advice over the internet.
References:
SMARCB1(INI1)-deficient Sinonasal Basaloid Carcinoma. https://pmc.ncbi.nlm.nih.gov/articles/PMC4141899/
Clinical Implication of Diagnostic and Histopathologic Discrepancies in Sinonasal Malignancies. https://pubmed.ncbi.nlm.nih.gov/32946597/
Impact of Clinical Factors and Treatments on SMARCB1 (INI-1)-Deficient Sinonasal Carcinoma. https://pubmed.ncbi.nlm.nih.gov/36856048/
Long-term outcomes of modern multidisciplinary management of sinonasal cancers: The M. D. Anderson experience. https://pubmed.ncbi.nlm.nih.gov/37165701/