Talk About It

S0522: We Talked A LOT in 2025 (And Why It Mattered!)

As we kick off a new year, Talk About It with Greg Grunberg looks back at an extraordinary 2025. In this Best of 2025 episode, Greg Grunberg and producer Nick Marzock revisit some of the most powerful conversations of the year—moments that educated, challenged stigma, and reminded us why using your platform matters. From breakthrough discussions on epilepsy genetics, precision medicine, and rescue medications, to unforgettable advocacy stories from Tony Coelho, Alan Faneca, Abigayle Weitl, and leading clinicians like Dr. Elizabeth Thiele and Dr. Barry Gidal, this episode captures the voices that shaped the year and moved the community forward. Whether you’re newly diagnosed, a caregiver, a clinician, or an advocate, this episode is a reminder that progress happens when we keep talking—and listening. ⏱️ Time Index 00:00 – Welcome & why 2025 mattered for the epilepsy community 01:14 – Sponsor thank you & season overview 03:29 – How the Best of 2025 was curated 04:35 – Epilepsy for Dummies highlights (Dr. Elizabeth Thiele & Lauren Aguirre) (Part One: https://youtu.be/OEdoGXpCRSY?si=ekSp4mgOU9rMJv6K Part Two: https://youtu.be/fIVU5x_QcSc?si=wK8xVmBpMtdP2Mk- ) 10:01 – Tony Coelho on the ADA, advocacy & using your platform (https://youtu.be/IpgMgcge5Mk?si=eXBf4PGM2bxMdwt2) 14:22 – Speaking truth to power: Tony Coelho & the Vatican 18:02 – Sunflower syndrome & rare epilepsies (Abigayle Weitl) (Payton Dejardan: https://youtu.be/oxSLyEwOzQ8?si=X4g3x5Qd1BYqxLH-) (Young Adults with Epilepsy: https://youtu.be/mryo1hSolKY?si=pat-3qpxc0zrCm5u) 23:33 – Self-advocacy with your care team (Janet Greenwood, Part One: https://youtu.be/-bN_hu0-Yxw?si=ImDQ9_h--PAL8iDD ) (Janet Greenwood, Part Two: https://youtu.be/YUK9zfEoczg?si=xlDsVoaG8mxnTgQb ) 25:08 – Pharmacy safety & medication awareness (Dr. Barry Gidal) (https://youtu.be/ESkZMv7whtM?si=LSK15Nk9wIkmuT7v) 30:32 – Social media, visibility & showing seizures to reduce stigma (Stanzi Potenza: https://youtu.be/EolDxFaIevc?si=j9zwZC3K35cTziby / Jamie Simpson: https://youtu.be/4fpmP_aFEnQ?si=d74UjX-fy10vbYa2 ) 35:09 – Alan Faneca: epilepsy, football & leadership (https://youtu.be/Yh-wXviGTnA?si=VMtBDXa8UUzhVB0C ) 38:49 – Using influence for good: advocacy across platforms 42:18 – Precision medicine & the future of epilepsy treatment (Dr. Barry Gidal) 44:59 – Looking ahead to 2026 & closing reflections 🙏 Sponsors This episode of Talk About It with Greg Grunberg is proudly sponsored by Neurelis and Jazz Pharmaceuticals. Thank you for supporting education, awareness, and stigma-reducing conversations in the epilepsy community. 🎶 Theme music courtesy of J.J. Abrams #talkaboutit #epilepsy #epilepsyawareness #EpilepsyAdvocacy #stigmareduction #caregivers #patientadvocacy #RareEpilepsy #precisionmedicine #UseYourPlatform #epilepsycommunity #bestof2025 #TonyCoelho #nflhalloffame #greggrunberg